Download PDF by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne: Achieving Justice in Genomic Translation: Re-Thinking the

By Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad

ISBN-10: 0195390385

ISBN-13: 9780195390384

This booklet explores implicit offerings made by means of researchers, coverage makers, and funders concerning who advantages from society's funding in overall healthiness study. The authors concentration particularly on genetic study and consider even if such examine has a tendency to lessen or exacerbate latest healthiness disparities. utilizing case examples to demonstrate the problems, the authors hint the trail of genetics learn from discovery, via improvement and supply, to future health results. subject matters contain breast melanoma screening and remedy, autism learn, pharmacogenetics, prenatal checking out, child screening, and adolescence suicide prevention. each one bankruptcy emphasizes the societal context of genetic learn and illustrates how technological know-how could swap if awareness have been paid to the wishes of marginalized populations. Written by way of specialists in genetics, health and wellbeing, and philosophy, this booklet argues that the clinical company has a accountability to reply to group must guarantee that study suggestions in attaining a lot wanted well-being affects.

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Extra info for Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit

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This dynamic fosters the development of products that have a known, reliable, and large customer base. Such drugs and innovations typically mimic other successful products, leading to the penchant for “me too” drugs that provide a minor, but incremental, improvement to an already successful blockbuster drug. Successful entrants in the market usually are drugs and innovations that provide a lifestyle benefit for many, rather than a life-saving opportunity for a few. For example, drugs addressing arthritis and joint pain, erectile dysfunction, depression, and anxiety are enthusiastically developed, with the knowledge that they will be readily marketable in the United States, Europe, and other industrialized markets.

If warranted by concern for public health and safety, or if the licensee failed to use and disseminate the invention as agreed), the government could access exclusively licensed technology. A. §§ 3701-3714). This act allows federal agencies to enter into joint venture Cooperative Research and Development Agreements (CRADAs) with private research facilities. CRADAs provide an opportunity for the government to partner with private industry by contributing personnel, facilities, and equipment to a research endeavor while the private entity provides funding and other resources.

This testing has been aggressively marketed to physicians and to potential patients, but the price tag permits access only for relatively wealthy women. The aggressive marketing generates demand for a test that has limited clinical utility for most women (Mouchawar et al. 2005). As a result, women may struggle to pay for the test, when neither they nor their physician realizes that they are not appropriate candidates for testing. This is a perversion of the market in which the purchasers have incomplete or inadequate knowledge.

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Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad


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